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March 6, 2021

Joined: May 5, 2014
Posts: 1286
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March 6, 2021

A big stink the whole media are making of the fact the NHS Staff are being awarded a 1% pay rise. Yes, they ARE worth more BUT, the Government have spent billions supporting workers, business premises etc,  including the massive NHS bill for Covid care & vaccination procedures nation wide, that I'm not surprised they say it's all they can afford to pay. Notwithstanding the £200k Boris has acquired to sort his No 10 flat out ( a bad mistake at this time) , every other public sector worker ( police, HM Prison Service etc) has had their pay frozen, with many thousands in the private sector having lost their jobs, firms have gone bust, many workers on furlough pay (effectively a 20% pay cut), and therefore IMO, nurses getting  1% pay rise ain't too bad a deal. My daughter is a nurse, and understands the situation, & despite the unions calling for strike action, states she would never go on strike. The whole country I'm certain appreciates the massive efforts the NHS have made especially during the pandemic, but as daughter Angela says, "we're only doing the job we joined up for" - I believe the Government should have said when announcing the 1% that "in the near future when hopefully the economy massively improves, we WILL award a more substantial, DESERVED pay rise  to the NHS" . I'm sure that would have pacified the rabid press & unions ( & given the nurses some hope too) . Incidentally, one of the nursing unions have said they'll contribute £35 million to a strike fund - why not give that to the members who you reckon deserve more money !?! In the meantime, realistically ANY pay rise received should be welcomed and not give cause to the hysteria the media have made of the affair. Some might totally disagree with me, if so, hit the key boards with your reasons ! John (JKW)

March 7, 2021

Joined: May 8, 2014
Posts: 1812
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March 7, 2021

John both my wife and I agree whole heartedly with you,when I consider that my daughter and her oldest have been paid 80% of their wages for sitting at home during this epidemic for months . Yes the NHS staff have been busy for the last year ,BUT that’s their JOB ,think on the millions who have NO job to go back to, due their jobs have gone the way of the Do Do . The MP’s who are making the most noise are the one’s claiming £2k a month EXPENSES for working from HOME on top of their WELL PAID job and as far as Union’s £35 million FUND to STRIKE,give their members a bonus. There’s one thing this GOVERNMENT could do is to RETURN  all the ILLEGALS sitting in military camps to their own country that would safe millions and possibly keep the INFECTION rate down in the Southern counties taking pressure off the NHS there. The other point is that it’s going take a few years to BALANCE the BOOKS after this PANDEMIC and all these at least the NHS staff can afford extra TAXES that are coming down the road .

March 7, 2021

Joined: May 12, 2014
Posts: 1384
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March 7, 2021

My granddaughter is a nurse, she is being paid to study for her Masters currently! I agree with both of you. JK’s daughter, as a senior nurse,  will earn a fairly reasonable salary if my memory serves me well. My granddaughter is at the 3/4 year point and also earns a very reasonable salary. I think it was last year the Govt agreed a 3 year rolling 9% pay uplift for nurses PLUS their yearly increments on the national sliding scale. Now they are getting an additional  1% PLUS inflation on top of that. This is a multi faceted issue. The MPs were mad to have accepted their inflation busting uplift last year in the middle of the crisis, that could only ever have laid the cornerstones of resentment. Some of the nation simply cannot accept that nurses, like firemen and other emergency services are paid to step up when the situation warrants it. By that I mean they are doing their job, the job they are paid to do, when  they react to emergencies such as pandemics, just as firemen do when fighting massive fires. JK is absolutely right, all other public sector workers have had their pay frozen AGAIN! I believe, firmly, the Govt would have included nurses in the pay freeze had they not been frightened of the backlash! The Govt hyped up the whole NHS heroes thing, they quasi created ‘the beast’ at the expense of many others working in equally difficult circumstances. I recall the head of the nursing and midwifery council on TV saying that calling nurses heroes was not helpful and created a false impression of nurses; dedicated, tireless, caring workers yes but not heroes. So, the 1% plus inflation is a sop, it’s a ‘look we know it isn’t much but the fiscal health of the economy doesn’t allow for more AND they alone amongst public sector workers have received an uplift’. Nurses strike? Not in a million years. It would destroy in a heartbeat the nation’s respect for nurses.

March 8, 2021

Joined: May 14, 2014
Posts: 261
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March 8, 2021

Hear Hear to ALL,.... BUT, I have to agree with John when he says that the Government should also have stated ( With regards to the nurses pay rise ) that, and I quote..... "in the near future when hopefully the economy massively improves, we WILL award a more substantial, DESERVED pay rise  to the NHS" also..... that a lot people do not know or even understand what "I SERVE" actually means or stands for.   Mick.

March 8, 2021

Joined: May 12, 2014
Posts: 1384
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March 8, 2021

According to today’s DT the Govt are hinting at doing exactly as John suggests. As I type this I am sat ( laid) in a reclining chair in the oncology unit starting my 4th of 12 chemo cycles. The day care unit is full of cancer patients undergoing chemo, it’s one in one out on a never-ending cycle. If you ever want an eye opener you should see how many folk have this disease. Today the chemo nurses are short staffed and rushed off their feet. Without exception they are caring, kind and very professional. None of them I asked would contemplate going on strike just as John’s daughter said.    

March 8, 2021

Joined: May 12, 2014
Posts: 1384
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March 8, 2021

According to today’s DT the Govt are hinting at doing exactly as John suggests. As I type this I am sat ( laid) in a reclining chair in the oncology unit starting my 4th of 12 chemo cycles. The day care unit is full of cancer patients undergoing chemo, it’s one in one out on a never-ending cycle. If you ever want an eye opener you should see how many folk have this disease. Today the chemo nurses are short staffed and rushed off their feet. Without exception they are caring, kind and very professional. None of them I asked would contemplate going on strike just as John’s daughter said.    

March 8, 2021

Joined: May 5, 2014
Posts: 1286
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March 8, 2021

David, The chemo unit still encourages your "double tapping" then !! Best wishes,  John (JKW)

March 9, 2021

Joined: May 12, 2014
Posts: 1384
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March 9, 2021

Lol it’s mandatory whilst on chemo John. It’s early morning, chemo also causes insomnia amongst many other nasty side effects ergo my post. Got up for a pee a while ago and face planted in the bedroom lol. Postural hypertension they call it, freaking scary I call it lol. No real damage , sore arm where I hit the wardrobe on the way down and a sore head from V’s bollicking. First time it happened it was an interesting experience, now not quite so lol. Thanks for your good wishes, stay safe ( looks who’s talking) take care. D.

March 9, 2021

Joined: May 8, 2014
Posts: 1812
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March 9, 2021

David I know what your going through as my wife is going through it to with Pancreatic C , She’s had a valve receiver put Her chest as the Chemo can collapse veins etc. Steroids and other drugs and a bottle and pump attachment to administer a drug over 2/3 days after her 4/5 hours in hospital getting main Chemo.Being computer savvy she’s googled what food is helpful in the fight/ help the chemo lots of greens cauliflower/ broccoli comes to mind . How are you managing the cold/ pins and needles in your hands as I never had this in my radiation treatment,Kay is having a hard time with it ,we also sleep in different beds due to the problems. One thing my army training did for me was that 24 hours after the pump is removed I give Her an injection to build up Her white blood cells . Then a weeks rest and start all over again as long as the blood test is OK ,and she has completed 4 weeks and has another 6/8 weeks before a scan of the Pancreas,fingers crossed,oh and the GP has said the Covid vaccination is ok but the flue one is gone . Take care .

March 9, 2021

Joined: May 12, 2014
Posts: 1384
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March 9, 2021

Hi Bob, I am pretty much an expert on Pancreatic cancer as far as a lay person can be. I am on 2 weekly cycles of a 6 month regimen of Folfirinox ( 5 fu) a harsh chemotherapy. I also have 5 hours of day patient chemo then come home with a 46 hour infusion pump. On the day following the ‘day patient chemo’ I start 5 days of dexamethasone ( steroids) to held guard against infection, as I have no spleen. The next day I start 5 days of self injections ( in the tummy) to boost white platelets. I have a PICC line in my underarm that goes into my chest through which my chemo is pumped and bloods taken. It seems your wife and I are on similar treatments. Pins and needles. Peripheral neuropathy it’s called. Yes I get it. Electric shocks if I touch anything cold, horrible jaw spasms periodically if the drink is even slightly cold, lip tingling, pins and needles...all par for the course lol. I had my Covid vaccination mid 3rd cycle, Astra Zeneca. The day I had it I could barely walk from chemo fatigue etc but I suffered no side effects at all other than a slightly tender injection site for one day. I strongly advise Kay (?) has it. I am so sorry your wife has this vile cancer Bob. Here’s an offer. I nursed my daughter through this cancer until she died. I have studied it all extensively and had long discussions with doctor friends about it. I am extremely well informed on the matter if I say so myself. For 3 years I was a lead mentor on a world wide pancreatic cancer support group. If I can be of ANY help at all to you both please PM me. Sometimes it helps to have a friend, particularly one fairly knowledgeable about the cancer, to bounce things off. The internet IS a good source of knowledge but shared experiences can be helpful too. The offer is there, I won’t be offended if you don’t need to.  Hope all goes well I really do. D

March 9, 2021

Joined: May 8, 2014
Posts: 1812
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March 9, 2021

Hi David,Kay here.Thanks for your offer of support. I was diagnosed January this year.It came out of the blue.I had a bit of discomfort above my navel which I put down to heavy digging in my garden.Dec. I had a ultra sound scan which showed a narrowing of the bile duct.January I had a stent fitted and biopsy of pancreas,which showed I had adenocarcenoma.I had the first cycle of chemo folfirinox(5) on the 16th Feb and at 2 week intervals.My paperwork says 10 cycles.My regime is a bit different,on the morning I take 6 dexamethasone 2mg each,the next 3 days four dex 2 mg, on same morning I take 1 Akynzeo.At the hospital I have 2 bags of infusion (2 hours) next an injection in the stomach to stop cramp.Then another infusion (1 hr) I then go home with a bottle attached for 48 hrs.Finaly Bob gives me injection for white blood cells 24 hrs later.Then it starts again with a blood test the day before the cycle starts again.Thanks again David.

March 9, 2021

Joined: May 12, 2014
Posts: 1384
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March 9, 2021

Hi, Kay lovely to talk with you. I am also on Folfirinox x5, it’s a harsh chemo regimen. I had distal pancreatic cancer ie in the tail of the pancreas. No metastasise luckily. I had a distal pancreatectomy and splenectomy in November and am undergoing what they call adjuvant chemo, 12 sessions over 6 months as a ‘mop up’ of any microscopic cancer cells that escaped. A tip, watch your blood glucose levels with the dexamethasone,  it sent mine sky high, dangerously high, I only take 3 x2.5 mg for 3 days, you are nearly double that. But they will be monitoring your levels when they do your bloods for sure. My cancer was found accidently during a CT for something else. Most are! The trouble with pancreatic cancer is there are few signs until it is quite advanced. Your discomfit upper left quadrant is classic. My daughter wasn’t diagnosed until she was stage 4 ( head of pancreas cancer) and was given palliative chemo. She died aged 46, 9 months from diagnosis to death. Hopefully yours has been caught earlier. As I said in my first post if ever you need a friend with lots of knowledge on this cancer please feel free to PM me. As a former NHS Chief Executive I have access to former colleague clinicians as well. When I first got involved in my daughter’s care I found it all a bit overwhelming so I joined a major support group and found sharing experiences very helpful. But I know you know knowledge is power and I learned enough to feel in control of my daughter’s treatment and now my own. Enough of my waffle lol, I actually do remember you from Herford days when I was a bolshie, jumped up Provost L/Cpl lol. You take care Kay, you will be in my thoughts. If you ever need a friend, want to bounce something off someone or whatever I am at your service. Good luck, God bless and keep you safe, regards to Bob, D.

March 10, 2021

Joined: May 12, 2014
Posts: 1384
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March 10, 2021

Kay it’s me again lol. Forget about the dexamethasone, I suddenly realised you haven’t had any of your pancreas removed like me. I had a third of mine chopped off and that is a contributory factor to the steroids causing high glucose levels. You will be fine, sorry! D.  

March 10, 2021

Joined: May 8, 2014
Posts: 1812
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March 10, 2021

David,I’m very sorry on your daughters death,it must have been a terrible shock.Was the end very painful. I understand if you don’t want to go there again.. I haven’t met my oncologist in person yet.When I spoke to her I asked what number the cancer was and had it spread.It was 3 then she said 2-3 it hadn’t spread but she was concerned re the blood cells surrounding the pancreas. Are there  any other questions I should ask her.I don’t know if the cancer is in the head or tail and does that affect what happens after the chemo.David,my email address Kathleen.riley5@gmail.com   Kay

March 10, 2021

Joined: May 12, 2014
Posts: 1384
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March 10, 2021

Hi Kay, messaged you D.  

March 11, 2021

Joined: May 8, 2014
Posts: 1812
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March 11, 2021

David not on that system can you use e-mail please ,Kay


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